Wednesday, September 8, 2010

Something I never realized!

As I was reading Gloria's blog about Micturition or OAB: Should you be taking Detrol? I realized that my infection problem may be due to a question she asks..."Why would an IC patient who doesn't not have leakage want to keep contaminated urine that has too many white blood cells in their inflamed, irritated bladder."
I've been taking Vesicare and honestly, maybe I should not take it for a while and see if things change...that in addition to the cost factor may have just made up my mind to stop!
Thanks to Gloria for making me see something that may be a solution to my problem!

Sunday, September 5, 2010

Where did the summer go?

Can you believe it's September already? I certainly can't.
It's actually been a great summer with very little complications as far as my IC is concerned. And of course after my last post, I ended up with another infection and Gina put me back on Bactrim...I'm suppose to be going once a month from June to do my urine cultures but with my new job, I've been missing getting to the lab before they close. I've managed to get one in and since I have to go in a few weeks to see Gina again, why bother going this coming week.
I've missed the NY State Fair for the second year in a row...it does bum me out, but I'm being realistic in that I don't have the money to spend this year. Oh well, there's always next year to look forward to :)
I'm going to my new favorite winery next weekend with my buddy Josie...3 Brothers http://3brotherswinery.com/index.php?option=com_content&task=view&id=1&Itemid=2
it's for her birthday celebration and we plan on spending the day at Bagg Dare Winery having some food and listening to a band.
I can honestly say if I know I'm going to "taste" I do take it easy. I can't afford to end up having a flair because I decided to be stupid and not think of the consequences of drinking too much wine. I take my Prelief before and limit my intake even though there's many good wines to taste.
With Fall coming there won't be many more trips planned. Old Forge is planned for October, I've never been there and there's this Hardware store that sells all kinds of goodies-it's like an old "General Store" so that will be fun and I have to hit the Life Is Good Store there in town. We may even hop a ride on the Adirondak Train to see the foliage.
My job is going well, no stress, some frustration...which is given when you are learning something new that you have really never done before. I will say Medicaid payments will be the death of me!
Enjoy those last few days of "summer"

Monday, August 2, 2010

Feelin Great!

So alot has gone on.
I started my new job at the end of June and I LOVE IT...no stress, no games!!!
I decided to try CystoProtek and I can honestly say I think it's helping. I have no symptoms, and I'm feeling great! Haven't had a major flair since my vacation.
I did have a slight problem that was self induced...Being a huge fan of Finger lakes Wineries, I went to FL Winefest with the girls for my second year in a row-I stopped and then thought I could do a couple more tastings and those couple more put me over the edge. But I was fully prepared in case something went wrong.
and...surprisingly enough I celebrated my 39Th birthday last week with 3 very tasty Margarita's with Prelief appetizer :)
I only over-indulge every once in a while-I believe you cannot give up the things you like and love, just enjoy them less. I may not be a great role model for anyone with IC, but I know that for myself I have finally gotten control for now and if I decide to indulge-it cannot be in excess and I have to be prepared for what ever happens, flair or not.
This summer has flown by, I can't believe it's actually almost over. I still have places to go, pictures to take, and people to catch up with.
Even so, I've been taking the time to enjoy the things I love with the people I love to do them with and it's been a relaxing, non-stressful, happy time...
That's what makes it all the more great!

Thursday, June 24, 2010

Some good news for once

Had my 3 month appointment today with Gina at Urology and for once there was no infection...but that could be because while visiting my "un-biological" sister and her family I had one. Thank goodness I had the sense to take my whole bottle of amoxacilin with me so I could get rid of it. Even though I used an OTC Test strip, I may not have really suffered an infection, but I have learned the difference between a flair and an infection.
I was getting to the point where I thought every time my boyfriend and I would have sex-I'd end up with another infection...it got to be draining on my physically & mentally...I'm not saying that my string of infections is over, but there is light at the end of the tunnel now that puts me at ease for the time being.
I just want to know why when one thing finally works (the bladder installations) another problem pops up...I just want to know why I've been getting infections and how I can prevent them.
So the plan is urine cultures once a month for the next 3 months, a follow up visit with Gina in 3 months, continue taking the amoxacilin at bedtime and using my Estrace Cream once a week.
I start a new job on Monday and hopefully don't have any harsh setbacks until I am out of training (which is for 3 months) and I get myself established with my new employer-my thoughts are to keep myself feeling well and be more positive...
Let's just hope it works!

Monday, June 14, 2010

Time-does it really heal?

I know, it's been a while since my last post...I've completed a temp job that was for 2 months and now am getting ready to go spend a week with my best friend and family before I start my new job.
I had another infection and Gina put me on Amoxacillin now-one a day at bedtime...I don't understand why I keep getting infections! It seems that every time I start to feel great and can do anything, something has to bring me down.

Thursday, May 6, 2010

IC Event

“Finding Better Relief: Working with an IC Healthcare Team” on June 5, 2010 in Nashville, TN.

The event will also be webcast live so if you don’t live in the Nashville area you can still tune in and participate online and even pose questions to the presenters.

Registration and more information: http://www.ichelp.org/Page.aspx?pid=771