Saturday, February 27, 2010

My Ah-ha moment

So this past Monday I decided that maybe my problem could be muscles...
I was using my muscle stim and it seemed to help, so I decided to call and make an appointment to get in to see my therapist...
I have to tell you...it has helped so much!
I feel almost back to "normal" again after going twice this week...

It's amazing how your mood lifts when you feel better!

Monday, February 1, 2010

Post treatment

Well, I had 10 days of no symptoms!


I managed to survive a bus trip to the wineries at the end of Janurary without any problems and or symptoms and a few nights of warming up with my much loved Manhattan's...I know that I cannot consume alcohol on a daily basis without "paying the consequences" and I also know and practice making sure I drink enough water in addition to drinking "triggers".

You shouldn't have to deprive yourself of the things in life that you enjoy. But knowing that at anytime my IC will be triggered and I may eventually have a flair, I know that everything in moderation is how I can prolong the inevitable.

Or so that's what I thought until it snuck back up on me little by little...making it's presence known, and eventually it wasn't just a little "pinch" anymore...the discomfort came back and I was back to denying myself of things that make me happy. And trust me, I crave my coffee, I can't give up my chocolate, and I deserve a glass of wine or a good drink once in a while-doesn't everyone?

Today I'm feeling the worst that I have since before my treatment. All I wanted to do is stay in bed all day-but that's letting this "thing" take over my life...so I jumped in a hot shower and finally got out of bed. I've been keeping track of how I am doing in a notebook and when I realized I only had 10 days with absolutely NO symptoms, I almost cried.

Maybe I overindulged too much??? Maybe being depressed isn't helping??? Or maybe this monster that has taken over my bladder hates me and doesn't want me to go back to having a normal life...Yes, I called it a monster because that is what it is! Monsters don't go away and don't show any compassion. I've had enough problems over the years and although I have managed to get rid of one of the major monsters in my life, another has taken over...Why???

I've lived with a disability all my life that I've made plenty of sacrafices and adjustments for and now I have an additional one, a bigger one, that makes me not want to do anything, see anyone or even just live life. I'm trying to find a new job as I've been out of work for almost a year now and how will this monster affect my job performance?

I'm angry, I'm sad, I'm depressed...I honestly wanted my 6 weeks of treatment to at least give me more than just a measly 10 days of relief. Is that too much to ask?